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Global Indianstory Global Indian ExclusiveProject Smile AZ and little acts of kindness by Pravneet and Hurshneet Chadha
  • Global Indian Exclusive
  • Indian Changemaker

Project Smile AZ and little acts of kindness by Pravneet and Hurshneet Chadha

Compiled by: Team GI Youth

(January 18, 2024) ‘Anyone can be a smilemaker’, believe Pravneet and Hurshneet Chadha, two teen brothers from Phoenix, Arizona. They are the founders of Project Smile AZ and as the name suggests, their aim is simple – spread some joy, which they have done over 80,000 people so far. The idea came to them in 2020 during the pandemic, as the brothers, who were 12 and 15 years old then, watched their parents, both of whom were doctors, fight the disease on the frontlines. They wanted to do something positive too, which led to the start of Project Smile Az. In 2023, their efforts fetched them a Diana Award.

Pravneet and Hurshneet were born in New York City and later moved with their family to Phoenix, Arizona. A sense of service had been ingrained in the boys at a very young age. “When I was five, my mother took us to the community kitchen and we would help hand out meals, pack food and cook. It made me feel great,” said Pravneet, the younger of the two, who is currently in high school. “We were young and didn’t know much about what we were doing but we just knew we were doing something good.”

 

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Small acts of kindness during the pandemic

So, when the opportunity presented itself in 2020, the Global Indians took it without hesitation. With both parents so actively involved during the pandemic, the situation was often the subject of dinner table conversations. “We had heard on the news how isolated people were, and we were talking about it with our parents,” Pravneet told The Pollination Project. Things were shutting down and patients couldn’t even meet their own families. “We wanted to make them feel that someone was there for them, that someone cared for them.” That’s when Hurshneet suggested making some get-well cards for them. It was a simple idea, but as we know, a little kindness can make all the difference.

Over the next two weeks, Pravneet and Hurshneet Chadha worked everyday to make around 200 motivational cards for Covid patients. They designed and drew everyone, and composed the messages themselves. “I remember vividly the first batch of cards we gave was to the hospital, Banner Estrella.” They reached out to the CEO asking if it was okay to send cards to the patients and he agreed. “They till have some cards hanging there, which is pretty awesome to see.”

It was meant to be a one-off project but when thank you notes started pouring in, they realised they were actually making a difference. “We realised small acts of kindness can have a meaningful impact.” They kept at making cards, going on to establish their non-profit with three additional board members and over 1000 volunteers across the US, Canada, Europe and India. Now, the cards go to hospitals, homeless shelters, veterans and cancer centres. They also mobilized young volunteers across the world to join in and do small acts of kindness once in a way. In fact, the movement took off so much that people began donating art supplies to them from around the world.

Pravneet and Hurshneet Chadha now also do book donation drives, and distribute art supplies, sports equipment and dental hygiene kits to young people in need.

Working with foster children

When Pravneet was in elementary school, a classmate, who was a foster child, didn’t have art supplies to do a class project. Pravneet shared his things with the boy and returned the next day with a bag of art supplies. “I can never forget the smile on my friend’s face,” he recalls.

Volunteers who wanted to join but couldn’t afford art supplies also contacted them. They coordinated with various organisations in Arizona to share the art kits they received through donations. Now, donating art kits to foster children is a regular part of what they do, and each kit includes cardstock, crayons, colour pencils, stickers, markers, and of course, a message on the box. The children now pitch in to make cards that are donated to senior citizens’ homes in Arizona State.

Branching out

Project Smile AZ has expanded from handmade cards to a host of other things. As part of their literacy drive, they collect “gently-used books” to donate to kids in need. Anyone can join in by doing a drive in their neighbourhoods, schools or churches, or simply gather the books they have at home. They also conduct snack drives for at-risk teens that need snacks at school, and distribute dental hygiene kits and sports equipment to underprivileged youth.

 

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A post shared by ProjectSmileAZ (@projectsmileaz)

Challenges

Even a project as noble as spreading kindness is not easy to accomplish. “One of the biggest lessons we had to unlearn was that you are too young to do anything on your own,” the brothers said in an interview. “We were only 12 and 14 when we started this project.” At the start, people didn’t believe the boys were doing the work themselves, but they persisted. They built a webpage, opened social media accounts and reached out to clubs and organisations. They connected with youth entrepreneurs around the globe as well.

The idea is to keep it simple and make a change. “These acts don’t require much funds or skills, making them inclusive for anyone, anywhere,” they say. “We have even worked with children with disabilities who enjoy making cards from our smile art kits. The goal is to create smile makers doing acts of kindness to bring smiles for all.”

  • Follow Project Smile AZ on Instagram and their website
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  • art supplies for foster kids
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  • Global Indian
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Published on 18, Jan 2024

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From UP’s Barnawa to Cannes in France: Nancy Tyagi’s journey of dreams

(June 7, 2024) Among the numerous top international celebrities who walked the Cannes red carpet this year was an unusual debut by Nancy Tyagi, from Barnawa village in Uttar Pradesh. The 23-year-old turned heads with her self-made pink gown at the 77th Cannes Film Festival, becoming an overnight sensation. With 2.5 million followers on Instagram, she boasts several brand endorsements and has garnered popularity and appreciation from even the celebrities. The Delhi-based influencer captured hearts after representing India on the global stage at Cannes 2024, showcasing her self-designed and self-stitched outfits.   View this post on Instagram   A post shared by ELLE India (@elleindia) “Stepping onto the red carpet at the 77th Cannes Film Festival as a debutant feels surreal. I poured my heart and soul into creating this pink gown, which took 30 days, 1,000 meters of fabric, and weighs over 20kg,” Nancy shared with her fans soon after her Cannes debut. “The journey has been intense, but every moment was worth it. I'm overwhelmed with joy and gratitude for the love and support from all of you. This is a dream come true, and I hope my creation dazzles you as much as your support has inspired

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“Stepping onto the red carpet at the 77th Cannes Film Festival as a debutant feels surreal. I poured my heart and soul into creating this pink gown, which took 30 days, 1,000 meters of fabric, and weighs over 20kg,” Nancy shared with her fans soon after her Cannes debut. “The journey has been intense, but every moment was worth it. I'm overwhelmed with joy and gratitude for the love and support from all of you. This is a dream come true, and I hope my creation dazzles you as much as your support has inspired me. Thank you from the bottom of my heart!” she added.

Stumbling into dress designing

Nancy had never imagined her life would turn into such a fairy tale when she decided to move to New Delhi from her hometown with the goal of clearing the UPSC exams. While moving from her small town of Barnawa in Uttar Pradesh to Delhi, all her relatives and neighbours told her parents that the money they were investing in her coaching could be better used to marry her off. However, her parents did not pay heed to such advice. Nancy’s mother and younger brother joined her, while her father stayed back to take care of their cab service business.

Life took an unexpected turn, when the lockdown interrupted her UPSC preparations, and the savings meant for her education started getting used up for everyday expenditures. Her father had given the family three lakh rupees for studies and rent, and was in no position to send more with his business being affected by the lockdown at the time. Her mother found a job in a factory, which was exhausting. Every evening, when she would return home covered in coal dust, Nancy's heart would break.

The arts graduate and her brother even worked at a call centre for a month and left the job when they were not paid any salary. However, the unpleasant circumstances opened a new door, one that led to her true passion - dress designing. Despite lacking formal training or a fashion degree, Nancy began creating outfits from scratch using an old sewing machine that was gifted to her mother at the time of her wedding.

 

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A post shared by Nancy Tyagi (@nancytyagi___)

“When we had just about a lakh of savings left, I decided to quickly buy a camera and start making videos and reels for Instagram to showcase my talent in dress designing. I thought that even if my plan didn't work out, I would have no regrets about not trying.”

Inspired by influencers, she wore her dresses to showcase the designs while her brother directed and shot her videos. They hoped their content creation endeavour would be successful someday, leading to brand deals and earning opportunities, so that they could give their mother a break from her unhappy job.

Getting success – an uphill task

For one year, they struggled to increase their views, which remained in the mere hundreds. Nancy decided to try something different and started adding dance elements to her videos, even though she didn't know much about dancing.

To increase her following, she began recreating dresses of celebrities and influencers using clothes bought from local shops. Through trial and error, she crafted elaborate outfits inspired by icons like Alia Bhatt, Deepika Padukone and many others. "I have never learned stitching," she says. "When I was a child, I used to stitch my dolls' clothes. I had bags full of clothes for my dolls. Using the same steps I started stitching my own clothes."

She modelled the outfits herself and danced to Bollywood numbers to make the videos interesting. People initially found her content weird and started making memes. She faced harsh trolls and body shaming. Relatives called to scold her, saying, "Look what you have done. People are making fun of you."

[caption id="attachment_38135" align="aligncenter" width="515"]Indian Fashion Designer | Nancy Tyagi | Global Indian Nancy Tyagi[/caption]

Undeterred, Nancy continued. Gradually, her follower count started increasing as she and her brother got into the groove of content creation. Once she started gaining popularity, people stopped body shaming her and calling her "skinny," and began appreciating her designs. "Complaining relatives stopped calling. Now I call them to share my success," she said in an interview.

“Earlier, I didn’t have the money to purchase a better sewing machine, but now I have got used to using it for two to three years. Even though I have the money now, I don’t think I need to buy a new one immediately,” she said. However, she made some purchases with her own money - something she couldn’t have imagined a few years ago - such as an iPhone.

The Cannes charisma

Brut India, a fast-growing digital video publisher, took notice of the rising star and promoted her talent by sharing her story with their audience. They even gave her a life-changing chance to be part of the Brut India Squad at Cannes.

Due to visa issues, her brother's plans to fly to Cannes were stalled at the last moment. It was the first time she was on a professional venture without her brother Manu. However, managing well without him gave her confidence that she could handle things on her own. “I had not gone anywhere without Manu but went straight to France without him,” she smiled.

 

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Flying abroad to one of the fashion world’s most prestigious events to showcase her couture, and that too on a business class ticket, has been an unbelievable experience that has filled Nancy with new energy. “Now I don’t want to copy or recreate. It will be my designs only,” said the designer upon her return. Many people including fashion icon Sonam Kapoor have asked her to design something for her. Nancy is more than happy.

Nancy Tyagi's journey from Barnawa to the Cannes red carpet epitomises the power of passion, determination, and resilience. Despite financial struggles, societal pressures, and harsh criticism, she transformed her dreams into reality through courage and creativity. Her success as a self-taught fashion designer, and journey to the global stage, highlights that with the courage to follow one's passions and the resilience to overcome challenges, anything is achievable. Nancy's story inspires to remain focussed on one’s dreams and steadfast in the face of adversity. Her story proves that true dedication can lead to extraordinary accomplishments.

  • Follow Nancy Tyagi on Instagram

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Indian child mountaineer: Bal Puraskar awardee Virat summits Mt Kilimanjaro, it’s Mt Kosciuszko next

(February 1, 2022) Standing stop a mountain peak, covered with a blanket of clouds is a fantasy for children. Virat Chandra Telukunta is no different. His favourite cartoon show — Doraemon - a fictitious character in Japanese manga would transport him to the mountains and back, even as he sat comfortably in his living room. Yet, unlike most children his age, the then seven-year-old decided to live his dream. A video call from his cousins trekking in Uttarakhand triggered his interest, and left a lasting impression. What followed was intense physical and mental training. Finally, he did the unthinkable for one so young. He went on to become the youngest person to conquer the summit of Mount Kilimanjaro - the tallest mountain in Africa.  The rare feat not only brought the Indian child mountaineer laurels but also the Pradhan Mantri Bal Puraskar Award, given to children (five to 18 years of age) with exceptional abilities and outstanding achievements. “The moment I was standing on the mountain peak covered with clouds, the only image on my mind was of Doraemon’s Nobita (a fictional character) and his friends jumping over the clouds,” laughs Virat, now eight. He was the only person from the state of Telangana

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e moment I was standing on the mountain peak covered with clouds, the only image on my mind was of Doraemon’s Nobita (a fictional character) and his friends jumping over the clouds,” laughs Virat, now eight. He was the only person from the state of Telangana among 29 others to have been selected for the prestigious award handed over virtually by Prime Minister Narendra Modi, recently.

An Indian child mountaineer finds his ‘calling’ 

“It was very cold there, my body ached. All I wanted to do is achieve my goal, come what may,” beams Virat in an exclusive with Global Indian. It took six days for the Indian child mountaineer to summit. At one point during his climb, the child confesses, he was bored so he spiced it up with many breaks!

An inspiration to all, Virat is grateful for that video call in 2020 from his relatives in Uttarakhand. “I had just finished my online classes and my mother was feeding me when Karthik anna (brother) and Vaishu akka (sister), who were trekking Rudugaira mountains, call, sharing their experiences and the vista. I was fascinated by the mountains instantly and decided that I too wanted to climb mountains. That's it, I had a lengthy discussion with my parents who agreed,” informs the Indian child mountaineer, a class III student of Gitanjali Devshala School in Hyderabad.

Indian Child Mountaineer | Virat Chandra Telukunta

His father Sharat Chandra approached Bharat Tammineni, a mountaineer who runs Boots and Crampons, a Hyderabad-based academy to train trekking enthusiasts. “Bharat Sir first did a physical evaluation. I started training on December 15, 2020,” informs the excited Indian child mountaineer. Then began the rigorous training. The Hyderabad lad would run for 6-7 km every day, do Suryanamaskars, sit-ups, meditation and breathing exercises (anulom-vilom and kapal bhaati) and mock-climbed the Moulali Fort, supervised by Bharat and others. “I got a chance to prove my mettle when I participated in a 5k run. After successfully completing it, Bharat Sir told me I was ready, and he chose Mount Kilimanjaro,” informs Virat.

The road to Mount Kilimanjaro for the Indian child mountaineer

Training completed, Virat, his parents and coach left for South Africa on February 28, 2021. Once formalities were done, they proceeded with the trek on March 5. The first stop was Mandara hut at an elevation of 2,720 metres (approximately 28,000 steps). After spending the night there, the next day, they left for Horombo hut at 3,720 metres. “Enroute to Horombo hut, I was bored, and taking short breaks so my parents shared some inspirational stories (to motivate me). We reached Horombo hut by evening, and spent two nights there,” recalls Virat, whose parents accompanied him till Horombo hut. Thereafter, his parents bid the Indian child mountaineer goodbye, and he undertook the arduous trek to Kibu hut at an elevation of 4,720 metres. “This journey was very challenging,” informs Virat, who overcame multiple challenges - extreme weather and body wear and tear.

Indian Child Mountaineer | Virat Chandra Telukunta

The following day, Virat woke up at 3.40 am and undertook the last leg of his journey. “It was a foggy day with heavy winds and snowfall. After trekking for hours, we reached the summit. I couldn’t believe what I saw. Clouds everywhere, and I was standing on top of it (images of Doraemon flitting past),” says Virat, eyes bright recalling seeing a rainbow for the first time. The Indian child mountaineer's descent to his anxious parents waiting at Horombo hut was good. “On seeing me, my mother broke down and hugged me real tight,” smiles the child, whose name has been recorded in the Asian Book of Records and Indian Book of Records for his feat. “Thereafter, I got so many gifts,” smiles the super trooper who stuck to his usual diet comprising Indian food while summiting Kilimanjaro.

Next is Australia for the Indian child mountaineer

Now, the Indian child mountaineer, Virat is enthused, “I am preparing to climb Mount Kosciuszko, the highest mountain in Australia. Bharat Sir suggested it,” pipes Virat, who otherwise likes playing guitar, reading, cricket, skating and even dancing. “My target is to climb all the highest mountain peaks in the world before I turn 10,” pipes Virat, who has participated in many competitions - storytelling, fancy dress, shloka recitation, cycling and running race. One can even find the little lad cooking with his mother on occasion.

Indian Child Mountaineer | Virat Chandra Telukunta

Named Virat, the Hyderabad boy says his mother came across the name reading Satyarth Prakasam. “Another reason is that the last letters of my parents name adds up to Virat,” smiles the Indian child mountaineer, an October 2013 born.

 

Reading Time: 5 mins

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Aryan Kumar: US Presidential Scholar promoting dental hygiene in rural India

(July 28, 2023) Shrewsbury resident Aryan Kumar, an 18-year-old activist from Massachusetts and one of the 161 recipients of the US Presidential Scholar 2022 award, believes that a single email could be the catalyst for a transformative program benefiting thousands of rural Indian residents. Through his initiative, Forgotten 32, Aryan aims to promote dental hygiene in India's rural villages. This impactful program not only addresses a pressing health issue but also showcases the potential of young Indian Americans in making a significant difference in the world. Aryan's journey started when he discovered the alarming lack of awareness about oral hygiene among people in India. Motivated by this revelation, he took it upon himself to educate underprivileged children in the country about the importance of dental care. To support his cause, Aryan collected essential supplies from local dentist offices and distributed them to those in need, making a meaningful impact on the lives of many vulnerable individuals. [caption id="attachment_23168" align="aligncenter" width="462"] Aryan Kumar[/caption] "I emailed a lot of dentists in Central Massachusetts to see if they would donate dental floss, toothbrushes and toothpaste to help,” he told MetroWest Daily News in an interview, adding, “We got around 1,000 donations, and I

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ndian" width="462" height="661" /> Aryan Kumar[/caption]

"I emailed a lot of dentists in Central Massachusetts to see if they would donate dental floss, toothbrushes and toothpaste to help,” he told MetroWest Daily News in an interview, adding, “We got around 1,000 donations, and I brought them to India and travelled a few hour outside of New Delhi to poorer villages and spoke in Hindi to teach children about these things and explained how to use them, before giving them to the kids.”

His relentless efforts as a senior at the Advanced Math and Science Academy yielded remarkable results, benefiting thousands of children through his partnership with the Ekal Vidyalaya Foundation, which facilitated the distribution of dental hygiene supplies to those in need. However, the pandemic put a screeching halt to the plan. Not one to be fazed by roadblocks, the activist has plans in place, "My ultimate goal is to set up full-time medical clinics in rural India."

The recipient of US Presidential Scholars medal believes that more than grades, it’s the extracurriculars that distinguish him from his peers. “A high SAT score is impressive but a lot of people have that. I have a pretty high GPA, too, but I don’t think those are the separating factors. I think the separating factors for me were the extracurriculars I was a part of,” the activist added.

In addition to founding Forgotten 32, Aryan Kumar is also the visionary behind Enough is Enough, a non-profit dedicated to promoting social justice and combating police brutality and racism in Massachusetts. Boasting a membership of over 2000 individuals, the organisation played a pivotal role in coordinating impactful Black Lives Matter protests across central Massachusetts. Its significant influence has grown exponentially, with more than 30 chapters established throughout the United States, amplifying the fight for equality and justice in communities across the nation.

[caption id="attachment_23165" align="aligncenter" width="828"]Activist | Global Indian | Aryan Kumar Aryan leading the Enough Is Enough initiative[/caption]

With a passion for biology, Aryan Kumar is set to embark on his academic journey at Washington University in St. Louis this fall. Demonstrating his dedication to the field, he used his summer to assist college students in their research projects, seeking a deeper understanding and perspective before finalising his career path.

"I cold-emailed about 100 professors. I got three responses — one saying no, one saying they had retired, and one from Dr. Lynn Adler (from UMass Amherst). I spent a lot of time working with her and Ph.D. students on their projects, to see if I really wanted to do biology and if this was something I was cut out to do,” he told the daily.

Aryan has set a academic path for himself but at the same time he wants to continue to dedicate his time and efforts to the impactful initiative he founded, Forgotten 32, where he strives to make a difference in the lives of underprivileged children in rural India by promoting dental hygiene and providing essential support.

  • Follow Aryan Kumar on Linkedin

Reading Time: 3 min

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Innovator at 16: Aarav Garg’s app teaches youngsters about tech 

(May 26, 2022) Making an impact has always been on teen innovator and entrepreneur Aarav Garg's mind. How, though?  He dabbled with the question for a while and found the answer lay in his passion – technology. A self-taught innovator, Aarav understood the power of knowledge and was keen to spread it to thousands of youngsters - first, through his YouTube channel, and then through his startup, TechNuttiez. "Most teenagers wait until college to either do coding or innovating because it’s the norm. We are breaking that stereotype by telling youngsters that they can learn early if they want to do so," Aarav tells Global Indian. Founded in 2021, the startup has already spread its wings among teenagers who are keen to learn. "I learnt everything online, without spending a single penny. And now I’m making that possible for others by providing them a platform to learn and engage with," says the Class 11 student whose innovation has been written about in Austrian and British technology magazines. [caption id="attachment_17209" align="aligncenter" width="571"] Aarav Garg[/caption] The early love for technology  His first tryst with robotics began at 10 when he was introduced to programming in school. "It opened up a new world

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" wp-image-17209" src="https://stage.globalindian.com/youth///wp-content/uploads/2022/05/Untitled-design-4.png" alt="Teen innovator | Aarav Garg | Global Indian" width="571" height="571" /> Aarav Garg[/caption]

The early love for technology 

His first tryst with robotics began at 10 when he was introduced to programming in school. "It opened up a new world for me and I immediately gravitated towards it. However, it was just a basic introduction," says Aarav. Every day after school, he would get on the internet looking for information. "Since my parents come from a non-tech background, YouTube became my learning tool. From dabbling in different programming languages to reading articles online, I learnt a lot," says the teen innovator, who built his first robot - the line follower - in the same year. It took him about a month to build.

"It follows a line on the ground as it’s mostly used in the manufacturing and storage industry. Companies like Amazon and Alibaba use them in their warehouses," says the TedX speaker.

[caption id="attachment_17213" align="aligncenter" width="757"]Teen innovator | Arav Garg | Global Indian Aarav Garg working on one of his innovations[/caption]

A propagator of self-learning, he believes "there is nothing one cannot learn online." With innumerable videos and articles available online, there is no dearth of information but accessing the right information is equally critical. The thought led him to start his YouTube channel in 2018. "In the last few years, I learnt a lot about robotics and wanted to give back to the community of self-learning through my channel. My first video garnered over 130k views and that pushed me to generate more content," says the teen innovator, whose mission is to educate youth on technology.

Innovator to entrepreneur  

Understanding its impact, Aarav wanted to scale it up, and in 2021, he launched his startup TechNuttiez - to bring together young self-learners under one roof. "We launched a mobile app on iOS and Android this February which has videos, articles, projects, interviews with budding entrepreneurs, and a monthly digital magazine that tells you everything you need to know about technology," adds the 16-year-old. His recent addition includes quizzes that help you earn "T-buck points" which can be redeemed at brands like Boat, Akudo and The Souled Store among others. "Our target audience is teenagers who are willing to self-learn. A lot of information isn't available on the internet, and that's where we come in - to bridge the gap."

[caption id="attachment_17211" align="aligncenter" width="724"]Teen innovator | Aarav Garg | Global Indian Technuttiez app built by Aarav Garg[/caption]

Calling this shift from a content creator to an entrepreneur "gradual", Aarav was keen to make a greater impact. "I wanted to convert my knowledge into a product that could be available to a larger audience," says the teen entrepreneur. The app has seen 2000 downloads from across 90 countries in the first three months of its launch. Currently, TechNuttiez has 20 teenagers working passionately in various departments like social media, content creation, marketing, and design. "Being in the initial stage, we’re experimenting and understanding the response to the app in order to shape up the product better," explains the teen innovator.

The future 

Entrepreneurship is the course he has taken, but he calls himself "an innovator" at heart. This passion led him to design a pocket weather station in 2021, an innovation that earned him recognition from Telangana IT Minister KT Rama Rao. "It started with an idea to make a video on how to use a temperature sensor. It was later translated into a handheld device that provides accurate weather prediction. The innovation was successful and garnered attention in India and abroad," says Aarav who also made a giant SD card as a part of a contest for the website Instructables.

[caption id="attachment_17212" align="aligncenter" width="642"]Teen innovator | Aarav Garg | Global Indian Aarav Garg with Telangana IT Minister KT Rama Rao.[/caption]

Technology is the future, and Aarav wants more students to get a hang of it early in their life. That's why his startup has partnered with schools in Hyderabad to create awareness on technology. "We want to show them the potential in the field," says the teenager, who plans to either crack JEE or get admission into a US university. But his heart lies in building more startups when he grows up. "I think starting early has its advantage. It gives you an edge over others. There are infinite resources available, make the most of them," he advises. The teen innovator, who loves playing snooker and football in his free time, is excited to grow his product and help it reach its potential.

  • Follow Aarav Garg on Linkedin and Twitter

 

 

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His brother’s keeper: Yash Gandhi Foundation leads the way in I-Cell disease research

(December 7, 2022) Yash Gandhi was eleven months old, the much-adored firstborn son of Ash and Sonal Gandhi, when he was diagnosed with a rare, terminal disease. He wouldn't make it past the age of five, doctors said, and there was nothing anyone could do. Shattered, his parents scoured the internet for information and answers, finding none. Their search for solace led to the creation of the Yash Gandhi Foundation in 2001, which has, over the years, given out sizeable grants for I-Cell research and has reached hundreds of thousands of people across over a dozen countries. In 2016, their younger son, Kavi Gandhi, took over the foundation and has been running it since, determined to keep his brother's memory alive.  To fight another day What they did find, however, was stories - hundreds of them, all similar to their own. The internet was full of devastated parents who, instead of allowing grief to debilitate them, were determined to fight for their kids instead. In some cases, these struggles even resulted in a miracle cure. That was how the idea for the Yash Gandhi Foundation first came about. "With the clock against us, we knew that any work we did

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rmined to fight for their kids instead. In some cases, these struggles even resulted in a miracle cure. That was how the idea for the Yash Gandhi Foundation first came about. "With the clock against us, we knew that any work we did was unlikely to benefit Yash, but to us, it didn't matter," Ash and Sonal Gandhi write, on the Yash Gandhi Foundation website. "What was most important was that we could make a difference and prevent another family from going through what we were at the time."  

[caption id="attachment_25140" align="aligncenter" width="1620"] The founders of the Yash Gandhi Foundation, Kavi Gandhi with his family. Photo: Twitter[/caption]

Handing over the reins

Today, the Foundation is run by their second son, Kavi Gandhi, now a student at Davidson College. In three years, they raised $460,000 to aid I-Cell research, to prevent the disease that claimed his brother's life from taking another. I-cell disease is caused by a genetic mutation and is a rare, inherited metabolic disorder "characterised by coarse facial features, skeletal abnormalities and mental retardation," according to the National Organization for Rare Disorders. Children with I-cell disease show delayed development of gross and fine motor skills, hearing loss, lack of muscle tone and growth delays.  

The Gandhis ran their foundation, the only one in the world for I-Cell, for 15 years. In 2013, they even climbed Mount Kilimanjaro to raise money for their cause. Three years later, however, they believed the time had come to close the foundation. Their 13-year-old son, Kavi, was not happy to hear the news. After giving it a few days of thought, he announced to his parents that he was going to revive the foundation and run it himself, in memory of his brother. 

Growing up with Yash

Only two years younger than Yash Gandhi, the family's trauma impacted Kavi too. He recalls a slew of hospital trips, and watching his brother hooked up to oxygen tanks and walkers. "We were really close like a lot of siblings are at that age," Kavi said. "A lot of my memories are from playing with him and spending time together. Those six years, I've definitely cherished and still retained a lot of those memories."  

When Yash passed away in 2009, the family created the Yash Gandhi Foundation. "Losing my sibling was probably one of the most formative experiences for me... the foundation is a way to transform the grief I felt with my brother into really honouring his memory and preserving that," Kavi remarked.   

[caption id="attachment_25141" align="aligncenter" width="780"]Kavi Gandhi | Yash Gandhi Foundation | Global Indian Kavi Gandhi was named the 2018 Global Genes RARE Champion of Hope for Teen Advocacy[/caption]

At the frontier of I-Cell disease research

Since he took over the foundation in 2006, Kavi has worked to connect with other families who have been impacted by I-Cell and has raised nearly half a million dollars towards ML II research. In 2020, Kavi interned at the Greenwood Genetic Center to study the disease in human and zebrafish cells. The young Global Indian is a 2021 John M Belk Scholar at Davidson College, where he is doing his undergraduate degree in Public Health, with a Minor in Hispanic studies. He's also a member of the university's jazz ensemble.   

In 2018, Global Genes named Gandhi the 2018 Global Genes RARE Champion of Hope for Teen Advocacy. Every year since 2012, the Yash Gandhi Foundation has issued research grants - in 2020, a smiling Kavi, standing with his parents, announced a $130,000 grant, their largest to date, to Dr Richard Street at the Greenwood Genetic Centre and Dr Stuart Kornfield of Washington University. 

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About Global Indian

Global Indian – a Hero’s Journey is an online publication which showcases the journeys of Indians who went abroad and have had an impact on India. 

These journeys are meant to inspire and motivate the youth to aspire to go beyond where they were born in a spirit of adventure and discovery and return home with news ideas, capital or network that has an impact in some way for India.

We are looking for role models, mentors and counselors who can help Indian youth who aspire to become Global Indians.

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