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Global Indianstory Global Indian ExclusiveMeet Jainul Abedin, founder of India’s first reusable rocket startup
  • Global Indian Exclusive
  • Indian Startups

Meet Jainul Abedin, founder of India’s first reusable rocket startup

Written by: Amrita Priya

(December 9, 2022) Jainul Abedin’s name is similar to that of a great Indian icon – the late Avul Pakir Jainulabdeen Abdul Kalam, or A P J Abdul Kalam, the former president of India and aerospace scientist who worked for DRDO and ISRO. In fact, Jainul was so fascinated by this similarity growing up that he developed a deep interest in rocket science and spacetech.  

In 2020, Jainul went on to establish Abyom Spacetech and Defence as a 19-year-old, during the year of his Bachelor’s degree in Physics. His vision was to build reusable rockets to prevent space debris and save operational costs. It has been working on developing ‘reignition liquid engine’ to make this possible. 

Indian Startups | Jainul Abedin | Global Indian

Jainul Abedin at Department Of Space, ISRO Ahmedabad

“Blue Origin and SpaceX are the only companies in the world that not only enable the launch of the rockets but also their landing back to earth,” he tells Global Indian. There is no such organisation in India. Jainul emphasises this, saying, “India has been launching rockets since the 196Os but we are still using conventional rockets. These are single-use rockets as they cannot re-land on earth.”  

Abyom Spacetech and the uniqueness of the idea driving it has brought Jainul recognition on coveted spacetech and aviation platforms like ISRO, IISF, DST, Aero India, and Toycathon. The innovator was also felicitated by Yogi Adityanath, the CM of Uttar Pradesh, for being the only spacetech entrepreneur in the state. 

Game changing idea  

Rockets become ‘unusable’ after the launch. But if there are reusable launch vehicles, they can be used later in other missions. Another benefit is of cost efficiency. With reusable rockets, the cost of space missions would reduce as space agencies would not be required to build a new rocket every time. 

Apart from reducing the accumulation of rocket waste in space, ‘it can make space tourism viable for common people’. That’s a goal Jainul holds close to his heart. “We are not just working in the realm of launching the satellite into orbit but also working on space applications to help sectors like agriculture, meteorology and telecommunications become more efficient through the use of these space apps,” he says.  

 

Abyom Spacetech and Defence has managed to get a few government grants through schemes like the Startup India seed fund. His startup is not only the first aerospace startup from Uttar Pradesh but the only one in the country working towards building reusable rockets.  

Early start 

The Uttar Pradesh boy had made up his mind to become an entrepreneur in the spacetech segment by the time he passed high school. “My urge to learn about space science was so strong that I went through every bit of learning material that I could access on the subject, whether it was books or information available on the internet.” 

Coming from a lower middle-class background, he did not have funds to give wings to his dream. This is where social media played a crucial role. He started building connections with people who had similar interest or background in aerospace and rocket science. Today some of the top executives in his startup including the CTO are people with whom he connected on social media during the ideation phase.  

On the Rocket Boy's birth anniversary, we are remembering & honoring the great Dr. Vikram Ambalal Sarabhai,the father of the Indian Space Program.

We're happy to announce that @AbyomSpaceTech has officially signed an MoU with @isro.

Let's continue the efforts together.#ABYOM pic.twitter.com/HIT9GhlCZQ

— Abyom SpaceTech and Defence Pvt. Ltd. (@AbyomSpaceTech) August 12, 2022

To generate revenue for the startup, Jainul and his team entered the edtech market. There, they went on to educate some 2500 people in rocket technology and used the revenue they earned to work on their vision. “Since I am from a lower middle-class family, I studied rigorously to do well in academics.” This hard work paid off when Jainul managed government scholarships at different stages of his education. “I used that money as well in building the startup,” he says.  

In 2020 Government of India opened the spacetech sector for private organisations. Across India, four innovators got selected to present their ideas to ISRO scientists.” Jainul was one of the four. 

Since the pandemic was in full swing during that time, Jainul was invited to a virtual conference organised by the ISRO headquarters, to speak on ‘Developing India’s potential in the space sector’ along with the other three winners. “I was fortunate enough to discuss the ongoing problems in India’s space industry on such a big platform,” says the entrepreneur, whose startup operates from the BITS Pilani campus in Hyderabad.  

Making a mark

He has come a long way in just two years. ABYOM SpaceTech and Defence is supported by MCA, INSPACe, ISRO, BITS Pilani, I-hub, StartinUP, DPIIT, and Government of India.  

Born and raised in UP’s Kushinagar, and briefly in Kolkata, the youngster finished high school and earned his Bachelor’s degree in Physics from Gorakhpur. Currently, he’s a master’s student at DDU Gorakhpur University.  

“The entrepreneurial journey is a bundle of challenges and without resources or backing, it wasn’t easy at first,” he says. The innovator, who comes from a community of farmers, has seen many rejections already on his journey to find funding and technical support. “Wherever I went to pitch my idea, people did not believe that someone as young as me was trying to work on finding a solution to such a technical and challenging problem.”  

 

He found recognition through a government scheme and has since been part of more than 45 national and international webinars, sessions, and conferences to brainstorm on problems faced in the field of aerospace. He has some published research papers to his credit. 

Though the 21-year-old has managed to turn many heads already, earning both grants and recognition, he wants to further scale up his startup and diversify into other commercial products in the field of aeronautics and defence. “Abyom requires more funding and I am trying to get it from private players this time,” he signs off. 

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Published on 09, Dec 2022

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Indian-origin Laiba Basit sets Guinness record as the youngest female author to publish book series

(November 28, 2022) Laiba Abdul Basit remembers the very first book she ever read. "It was 101 Stories for Girls," she tells me. A prolific reader by the time she began school, the now eleven-year-old Laiba Abdul Basit entered the Guinness World Records in 2022, as the youngest female author to publish a book series in English, having brought out her second book at the age of 10 years and 164 days. The author of the Order of the Galaxy trilogy, Laiba broke the record held by Saudi Arabian author Ritaj Hussain Alhazmi, who was 12 years old when she published her series. Laiba is a girl of few words, pausing to write in her book from time to time as she speaks with Global Indian. She appears stoic even about her Guinness achievement, admitting later, "I don't know if I like being famous, really. I'm scared of cameras." The family was away on a trip in Calicut when they received the news.  - "We went back home, to my father's ancestral home in Kerala and everyone was so happy. It was a very joyous night." Media attention was plentiful, thanks in part to Laiba's grandfather, who worked as a journalist

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when they received the news.  - "We went back home, to my father's ancestral home in Kerala and everyone was so happy. It was a very joyous night." Media attention was plentiful, thanks in part to Laiba's grandfather, who worked as a journalist in Qatar and talked about his granddaughter online.

[caption id="attachment_24767" align="aligncenter" width="300"]Laiba Abdul Basit | Guinness World Record | Global Indian Laiba Abdul Basit, Guinness World Record holder[/caption]

A born wordsmith

Born in Kerala, Laiba grew up in Doha, Qatar, where her father, Abdul Basit, works in the oil sector and her mother, Thasneem Mohammed, runs a business. "I started writing through reading," she says. "My mother taught me the alphabet and how to read before I joined school." She's still a prolific reader, listing Enid Blyton, JK Rowling and Roald Dahl as her favourite authors. Her grandfathers, KM Abdur Raheem and Mohammed Parakkadavu were cultural and social activists in the Gulf Cooperation Council.

By the time she was in the first grade, she began writing herself, scribbling short stories, ideas and phrases in a notebook, and even on pieces of paper that she stuck to the walls of her house. "I was in first or second grade when I decided to write my own stories," Laiba says. "I showed my teacher some of the short stories and she told my parents about it. After that, my parents started taking an interest."

Penning her success

When the first lockdown was imposed in 2020, Laiba switched to typing instead and finished her first book, 'The War for the Stolen Boy'. It took her about a year and a half to write. The series tells the story of four siblings who go out on intergalactic adventures. "I was inspired by writers like Morgan Rice and JK Rowling to do my own thing," Laiba remarks. "I had also developed an interest in astronomy at that time. Since I didn't know much about space, I thought I would go with fantasy.

When The War for the Stolen Boy was complete, Laiba and her father approached a university press in Doha. Unfortunately, the publishing process had slowed down due to the pandemic. "I found out about Kindle direct publishing and three hours later, the book was ready." The second book was taken up by Dr Sabrina Lei, Director of the Rome-based Tawasul Europe Centre for Research and Dialogue. "It took me about six months to write. I remember finishing it at 4 am and rushing to wake my father to tell him. He thought he was having a dream," she laughs. The third book in the series, The Book of Legends, was published by Lipi Publications.

Looking ahead

[caption id="attachment_24769" align="aligncenter" width="744"] Laiba was recognized by the Indian Embassy in Doha[/caption]

The Guinness World Record holder is already working on her fourth book, an epistolic novel about two friends who live sixteen hours from each other. The story is told entirely through their letters and she is looking for international publishers. All this is made possible by her parents, who have been extremely supportive of their daughter. "They deal with all the documentation and everything required for publishing. They help me edit my novel as well," Laiba says.

In her free time, she enjoys roller skating, these days inside the apartment as FIFA fever grips Doha. What does she want to be when she grows up? "Math is my favourite subject," she says, thoughtfully in response. "I want to keep writing but I would also like to try something new." Breaking into a grin and finally giving me a glimpse of the child within, she adds, "I want to be a leader when I grow up. I want to be President."

  • Check out Laiba's series, Order of the Galaxy here
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Jash Kalyani: A Change Agent in Promoting Culture, Community, and Inclusivity

(July 17, 2023) How many 22-year-olds can claim to have helped implement policy changes in their universities and local communities? For Aurangabad-born Jash Kalyani this is a reality that he embraced early in university career. Now a senior analyst in the product management division at Royal Bank of Canada, Jash continues to further his dream that was born out of a passion for promoting culture, community and a sense of inclusivity. From helping his Canadian alma maters Huron University and Ivey Business School institute policy changes to encourage EDI on campus, to collaborating with the city council for the City of London as a community connector, and publishing case studies on the subject, Jash is intent on being a change agent. Born in Aurangabad, Jash, an only child, lost his father when he was 9. Raised by his mother and grandparents, the lad found himself wanting to achieve something from an early age. “I was never given a path as such, but my mother and grandparents were confident in my abilities. My mother was convinced that I’d do well in whatever I chose. That worked well in my favour as it boosted my confidence levels,” says Jash, who moved to Dubai

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, who moved to Dubai after his class X to join his mother. “She was already working in Dubai at the time and I decided to pursue my A levels there.”

[caption id="attachment_31955" align="aligncenter" width="505"]Jash Kalyani Jash Kalyani with his family at his graduation.[/caption]

By age 17 Jash moved to Canada to pursue his graduation from Huron University College where he studied political science in years 1 and 2. “I’d say Canada shaped my adulthood while India shaped my childhood. Canada is where I got my driver’s licence, got my first car and many other firsts,” he says, adding, “I got a job on my first day of college as a line cook in the university cafeteria. I wanted to build work into my schedule from day 1 and not after I graduate.”

During his time at Huron Jash also founded the Huron Indian Cultural Association (HICA) in 2018. The Association continues to thrive today and is a means for students to celebrate and share Indian culture with the Huron community. Over the last five years, the association has grown to become one of the largest student clubs on campus and at roadshows is the first to be showcased by the university. “I wanted to build a sense of community on campus and that’s how the club came about. Huron is a traditionally Anglican school and with HICA we celebrate Diwali in the chapel and Holi on the campus. The aim is to help students find a community outside of home and has now become one of the first things an Indian student coming here looks for.”

[caption id="attachment_31957" align="aligncenter" width="507"] Jash Kalyani during his city council work[/caption]

In the meanwhile, Jash also began working as a community connector with the municipal committee for City of London. “Here I worked with young and marginalised people. It involved a lot of grassroot work and over the course of three years I’d spoken with as many as 1,500 people,” says Jash. By the time he got to year 3 Jash began to get more involved in the aspects of equity, diversity and inclusion (EDI). It was also around the time the George Floyd incident occurred. “I was able to hone into EDI around this time and turned my focus towards it. For the first time, I also realised what it really meant to be a South Asian in Canada.”

The youngster also faced racism and used that as a learning experience to pivot his work. “I was sitting at a cafe and eating when a white guy called the cops on me for not wearing a mask. There were plenty of others there without a mask because we were all eating. But he targeted me as a ‘brown person’,” says Jash, adding, “It was scarring.”

The incident prompted Jash to speak to his university about what it was doing to make people feel safer and if it was systemically addressing racism. “That led to me doing an internal review for the school and a case study on Huron in which I got students to participate and suggest strategies.”

[caption id="attachment_31958" align="aligncenter" width="512"] Jash Kalyani at his graduation.[/caption]

As he moved to Ivey Business School, Jash wanted to continue his work in EDI and be a change agent. “I wanted to use educational platforms to talk about EDI and tied up with Ivey to build something into their curriculum. That’s how I ended up publishing an EDI onboarding module for the school with other students. The idea was to make EDI part of the student experience,” he says. He went on to intern with the Royal Bank of Canada, and was eventually hired by them.

Jash Wins Ontario Remembrance Award

In recognition of his contributions Jash was awarded the Ontario Remembrance Scholarship by the Ministry of Colleges and Universities and Western University in 2021. Jash was one of the four students to receive the award which was instituted in the memory of the four Iranian students who lost their lives on board Flight 752.

“Over the years I find myself becoming more interested in pedagogy and how EDI can be built into the curriculum. To this end, I have published two other case studies and also worked with the City of London on what it can do from a civic engagement perspective for people with marginalised identities,” he says. The school also funded him to go to Kenya and teach an entrepreneurship elective at MOI university.

[caption id="attachment_31956" align="aligncenter" width="501"] Jash Kalyani in Kenya.[/caption]

When he graduated business school in 2022, Jash took up his first job with Mondelez which proved to be a great learning experience. He later took up a role as senior analyst with RBC where he works in product management and credit card strategy. “That apart I’m also involved with several non-profits. I continue to publish case studies for the school and am currently designing a digital capstone experience with insendi, a British Educational Consulting Company, meant for students at Ivey for next year,” says the youngster. “I’m also working for a boutique consulting company that works in the EDI space and am going to flying school to become a recreational pilot,” he smiles.

Follow Jash on LinkedIn and Twitter.

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Indian-origin Omishka Hirachund is bridging healthcare divides in South Africa

(February 10, 2024) When Omishka Hirachund was a child, her grandmother suffered a hemorrhagic stroke and was admitted to the ICU. At that tender age, she was extremely frightened to enter the ICU, and her heart shattered when her grandmother passed away. "But it sparked a passion in me to become a doctor and make a difference in patients' lives,'' Omishka shared. Omishka, who is of Indian descent and living in Africa, went on to study medicine, viewing it not just as a career but as a means to serve society. Having completed her MBBCH at the University of Witwatersrand in 2019 and her Masters in Medical Sciences at the University of Kwa-Zulu Natal  in 2023, she has been serving as the medical officer, internal medicine in the Department of Health, South Africa. She has also now aligned herself as a volunteer doctor with the #keready project – an initiative of DGMT, a South African foundation that uses mobile units to provide free health services in underdeveloped, rural communities of South Africa to promote primary healthcare. [caption id="attachment_35742" align="aligncenter" width="599"] Dr Omishka Hirachund[/caption] For her selfless service for the #keready project and other voluntary initiatives to promote healthcare and wellbeing,

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ces in underdeveloped, rural communities of South Africa to promote primary healthcare.

[caption id="attachment_35742" align="aligncenter" width="599"]Indian origin | Omishka Hirachund | Global Indian Dr Omishka Hirachund[/caption]

For her selfless service for the #keready project and other voluntary initiatives to promote healthcare and wellbeing, Omishka Hirachund was named in the annual Mail and Guardian's ‘200 Young South Africans’ list of 2023. She was one of the 18 Indian origin changemakers to be named in the list.

The #keready initiative

The #keready mobile clinic project has been made possible through a grant from the Department of Health of the Federal Republic of Germany that DGMT received. The project is making healthcare accessible, affordable, and relatable. With her goal of making South Africa a safer place, especially for children and women, Omishka has played a vital role in the movement.

The #keready is being carried forward in association with the provincial departments of health in the Eastern Cape, Gauteng, KwaZulu-Natal, and Western Cape areas of South Africa. Durban based Omishka provides voluntary services in the eThekwini and the Umgungundlovu districts.

With the help of young doctors and nurses #keready is not just focussed in providing free healthcare but also uses social media channels, and podcasts to help people find the right health information. Since social media and podcasts are platforms that attract more young people, this demographic segment is receiving healthcare tips and advice, which they tend to overlook.

[caption id="attachment_35743" align="aligncenter" width="831"]Indian origin | Omishka Hirachund | Global Indian #keready mobile clinic[/caption]

Passionate about making South Africa better

“I would like the healthcare system to support primary healthcare initiatives and ensure equitable access to healthcare for all,” remarked Omishka after being named in the ‘200 Young South Africans’ list.  Minimisation of discrimination against people living with HIV, more accessible and acceptable obstetric healthcare to pregnant women, and menstrual hygiene are some of the issues that she deeply cares about.

“The gender-based violence rates and the repercussions of the violence on our society and healthcare systems are devastating. I would like South Africans to remember who they are and what we fought so hard for — equality,” says Omishka who has started the anti-substance abuse project in the Wentworth area for teenagers, in coordination with Dr Daniel Kocks and the Department of Social Development, Government of South Africa.

The young doctor serves as a volunteer Subject Matter Expert on a medical talk show aired by Megazone Radio, aiming to educate people about common diseases such as diabetes, hypertension, and depression. Additionally, she contributes articles on healthcare to scholarly journals.

Volunteering – a passion

Since her school days, Omishka has had a passion for volunteering. She actively participated in feeding schemes and donation campaigns organised by the Seva Bhakti Foundation in Durban and neighbouring areas. Additionally, she contributed to regular feeding and baking initiatives at the social service organisation, Aryan Benevolent Homes. Her involvement as a volunteer with St. Thomas Children’s Centre in Durban dates back to her growing up years. During the Covid-19 pandemic, the then medical student had dedicated herself to assisting people in various ways. “I was part of the mask drive organised by the department of paediatrics, King Edward Hospital, Durban,” she shared. The youngster was also part of the sanitary pad drive by Kerr House Women's Hospice in 2021.

 

View this post on Instagram

 

A post shared by Keready SA (@kereadysa)

Driven by her life’s mission to empower disadvantaged women, Omishka has been providing donations, assistance, lectures and educational counselling workshops at the Open Door Crisis Centre supporting abused women and children. She is also a member of the Umhlanga Women's Association which works for food relief in destitute areas.

Life beyond healthcare and future plans

Born and brought up in Durban, Omishka was a very dedicated student right from her school days. She was selected as the head girl of her school and vice house captain of the school house, and had passed the International Benchmark Tests with distinction in Mathematics, Science and English.

Although she is armed with a bachelors and master’s degree in medicine along with diploma in primary emergency care and diploma in HIV Management Omishka’s educational goals are far from over. She aspires to specialise in cardiology or endocrinology.

Beyond the world of healthcare Omishka’s passions include travel, running and reading.

  • Follow Dr Omishka Hirachund on LinkedIn and Instagram

Reading Time: 5 mins

Story
Ayaan Saboor Mendon: Nine-year-old mountaineer defying limits and conquering peaks

(April 11, 2024) "Aconcagua, we came, we saw, we conquered," said Ayaan Saboor Mendon after becoming the youngest mountaineer to ascend Mt. Aconcagua at the age of 9 years and 6 months, this February. "Being on top of the world at such a tender age is amazing," he mentioned on social media. Ascending about 20,000 feet of the highest peak in the Americas was tough. "Despite facing challenging weather conditions and strong winds that prompted us to prioritise safety over reaching the peak, every moment of this journey was cherished," said the climber. This is not the first feat of the Indian-origin, Dubai-based mountaineer. Last year, at the age of eight, he had scaled Mount Elbrus in Europe. Before that, he had ascended Mount Kilimanjaro in Tanzania, Mount Kosciuszko in Australia and Mt Everest base camp in Nepal. [caption id="attachment_37089" align="aligncenter" width="647"] Ayaan Saboor Mendon[/caption] Climbing high with encouragement and support of parents Given his young age, the mountaineer is always accompanied by his parents on mountaineering expeditions. "Immense thanks to Mom, Dad, my guides, and all those who contributed to making this unforgettable expedition possible. I am deeply grateful that my parents not only support me but also prioritise

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rents

Given his young age, the mountaineer is always accompanied by his parents on mountaineering expeditions. "Immense thanks to Mom, Dad, my guides, and all those who contributed to making this unforgettable expedition possible. I am deeply grateful that my parents not only support me but also prioritise my well-being and health throughout all my climbs," he had remarked after the Mt. Aconcagua expedition, adding, "Your presence in this milestone means the world to me. Here's to embarking on the next adventure."

The young mountaineer has inherited the love for climbing from his parents, Vani Mendon and Saboor Ahmad.

The American expedition

During the arduous Aconcagua expedition in America, Ayaan successfully climbed up to 19,600 feet on the daunting slopes of the mountain which stands at a towering height of 22,838 feet.

With just 3,000 feet, Ayaan was ready to become the youngest person in the world to summit the peak but they faced adverse weather conditions during the journey.

With wind speeds expected to exceed 65 km/h for three consecutive days, his parents decided to prioritise Ayaan’s safety over continuing with the ascent.

 “Considering the unfavourable weather conditions and the inherent risks associated with climbing, particularly for someone of my age, we opted against it. We were quite apprehensive; the conditions made it challenging for us to even walk,” the Dubai based climber shared in an interview with Khaleej Times.

“Even though his slender frame could not proceed, his resilience and determination shone through. It is nothing short of an impressive record in itself,” remarked Ayaan’s mother, Vani.

 

View this post on Instagram

 

A post shared by Ayaan Saboor Mendon (@ayaan.sm)

This was the young mountaineer's third major attempt and it began on a high note. At the Aconcagua Base Camp, he had a chance encounter with his idol - Nirmal Purja MBE, a Nepal-born naturalised British mountaineer who achieved the remarkable feat of summiting 14 peaks in just six months. Impressed by the young boy, Purja inquired about his identity. Coincidentally, Ayaan was clad in the mountaineering gear from Purja's own brand.

Their journey commenced on January 21, with the family planning to reach the summit after 20 days on February 11, navigating through various checkpoints leading to the peak. Ayaan found himself among a group of over 5,000 individuals attempting to summit the peak, making him the youngest among them. All others were at least 16 years old, requiring him to obtain court approval. The application process for this had begun last year.

Past milestones

At the age of eight, Ayaan successfully scaled Mount Elbrus in Europe last year. Expressing gratitude to their guide, he had remarked, “A special shout-out goes to our exceptional guide, who proved to be our guardian angel amidst dangerous weather conditions. Your support, knowledge, and quick thinking saved our lives and made this experience memorable.”

Despite aiming to reach the peak within eight days, the young hiker had completed the ascent of the 5,642-metre-high peak in just five days. Prior to this achievement, he had already scaled Mount Kilimanjaro in Tanzania, Mount Kosciuszko in Australia and Mt Everest base camp in Nepal.

Additionally, he had participated in Tough Mudder (an endurance event series in which participants attempt 10-to-12-mile-long obstacle courses) and Spartan races (a series of obstacle races of varying difficulties). With these early achievements, his ambitions to conquer the mountains had only grown.

 

View this post on Instagram

 

A post shared by Ayaan Saboor Mendon (@ayaan.sm)

Toiling hard

The student of North London Collegiate School in Dubai undergoes intense training sessions to prepare for his mountain adventures. It involves activities like treadmill jogging, walking with heavy weights, pushing sledges, and completing hurdle courses. While these activities may seem demanding for a boy who is not even 10, it's precisely this dedication that makes him a mountaineer at such a tender age.  

He also quite often explores the hills of Hatta and Ras al Khaimah in UAE to hone his skills.

Giving back

The mountaineer is good at saving money. Last year he was deeply moved when he heard about the innocent people dying in the Gaza conflict. Before that he did not know much about the wars. He had Dh8,000 in savings from his expedition awards. Upon discussions with his parents and tutor when Ayaan learned about the suffering children and families, he donated the amount to help them out in his own little way.

Aiming high

Full of ambitions and fascination for mountaineering, the young achiever has his future expedition goals set.

He aims to conquer the peaks of the Himalayas by the age of 16, a feat that would establish him as the youngest to summit the tallest of all the 14 tallest peaks in the world. "Age is not a barrier," he believes.

[caption id="attachment_37091" align="aligncenter" width="619"]Indians in UAE | Ayaan Saboor Mendon | Global Indian Ayaan Saboor Mendon[/caption]

  • Follow Ayaan Saboor Mendon on Instagram

Reading Time: 5 mins

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His brother’s keeper: Yash Gandhi Foundation leads the way in I-Cell disease research

(December 7, 2022) Yash Gandhi was eleven months old, the much-adored firstborn son of Ash and Sonal Gandhi, when he was diagnosed with a rare, terminal disease. He wouldn't make it past the age of five, doctors said, and there was nothing anyone could do. Shattered, his parents scoured the internet for information and answers, finding none. Their search for solace led to the creation of the Yash Gandhi Foundation in 2001, which has, over the years, given out sizeable grants for I-Cell research and has reached hundreds of thousands of people across over a dozen countries. In 2016, their younger son, Kavi Gandhi, took over the foundation and has been running it since, determined to keep his brother's memory alive.  To fight another day What they did find, however, was stories - hundreds of them, all similar to their own. The internet was full of devastated parents who, instead of allowing grief to debilitate them, were determined to fight for their kids instead. In some cases, these struggles even resulted in a miracle cure. That was how the idea for the Yash Gandhi Foundation first came about. "With the clock against us, we knew that any work we did

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rmined to fight for their kids instead. In some cases, these struggles even resulted in a miracle cure. That was how the idea for the Yash Gandhi Foundation first came about. "With the clock against us, we knew that any work we did was unlikely to benefit Yash, but to us, it didn't matter," Ash and Sonal Gandhi write, on the Yash Gandhi Foundation website. "What was most important was that we could make a difference and prevent another family from going through what we were at the time."  

[caption id="attachment_25140" align="aligncenter" width="1620"] The founders of the Yash Gandhi Foundation, Kavi Gandhi with his family. Photo: Twitter[/caption]

Handing over the reins

Today, the Foundation is run by their second son, Kavi Gandhi, now a student at Davidson College. In three years, they raised $460,000 to aid I-Cell research, to prevent the disease that claimed his brother's life from taking another. I-cell disease is caused by a genetic mutation and is a rare, inherited metabolic disorder "characterised by coarse facial features, skeletal abnormalities and mental retardation," according to the National Organization for Rare Disorders. Children with I-cell disease show delayed development of gross and fine motor skills, hearing loss, lack of muscle tone and growth delays.  

The Gandhis ran their foundation, the only one in the world for I-Cell, for 15 years. In 2013, they even climbed Mount Kilimanjaro to raise money for their cause. Three years later, however, they believed the time had come to close the foundation. Their 13-year-old son, Kavi, was not happy to hear the news. After giving it a few days of thought, he announced to his parents that he was going to revive the foundation and run it himself, in memory of his brother. 

Growing up with Yash

Only two years younger than Yash Gandhi, the family's trauma impacted Kavi too. He recalls a slew of hospital trips, and watching his brother hooked up to oxygen tanks and walkers. "We were really close like a lot of siblings are at that age," Kavi said. "A lot of my memories are from playing with him and spending time together. Those six years, I've definitely cherished and still retained a lot of those memories."  

When Yash passed away in 2009, the family created the Yash Gandhi Foundation. "Losing my sibling was probably one of the most formative experiences for me... the foundation is a way to transform the grief I felt with my brother into really honouring his memory and preserving that," Kavi remarked.   

[caption id="attachment_25141" align="aligncenter" width="780"]Kavi Gandhi | Yash Gandhi Foundation | Global Indian Kavi Gandhi was named the 2018 Global Genes RARE Champion of Hope for Teen Advocacy[/caption]

At the frontier of I-Cell disease research

Since he took over the foundation in 2006, Kavi has worked to connect with other families who have been impacted by I-Cell and has raised nearly half a million dollars towards ML II research. In 2020, Kavi interned at the Greenwood Genetic Center to study the disease in human and zebrafish cells. The young Global Indian is a 2021 John M Belk Scholar at Davidson College, where he is doing his undergraduate degree in Public Health, with a Minor in Hispanic studies. He's also a member of the university's jazz ensemble.   

In 2018, Global Genes named Gandhi the 2018 Global Genes RARE Champion of Hope for Teen Advocacy. Every year since 2012, the Yash Gandhi Foundation has issued research grants - in 2020, a smiling Kavi, standing with his parents, announced a $130,000 grant, their largest to date, to Dr Richard Street at the Greenwood Genetic Centre and Dr Stuart Kornfield of Washington University. 

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About Global Indian

Global Indian – a Hero’s Journey is an online publication which showcases the journeys of Indians who went abroad and have had an impact on India. 

These journeys are meant to inspire and motivate the youth to aspire to go beyond where they were born in a spirit of adventure and discovery and return home with news ideas, capital or network that has an impact in some way for India.

We are looking for role models, mentors and counselors who can help Indian youth who aspire to become Global Indians.

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